One Wish

You know what they say, no news is good news. There's really not a lot going on with Chelsea, but I thought you might find my overly emotional day interesting if not humorous. No, I'm not pregnant, just emotional. It could be because I can't harp on Ryan like I normally do, so it just builds up on me...sorry hon, but he'd probably agree!

We headed to the playroom bright and early this morning to visit with some friends and get into some mischief. There is a volunteer who mans the playroom every week day, Granny. She's not overly friendly and has been known to tell kids 'no' a time or two. Today Chelsea climbed onto the bottom shelf of a light weight Barbie house (she loves to climb into and hide into small spaces) while she's awaiting everyone to notice how cute she was, Granny heads over to her, "oh no no no, you can't do that," and she picks her up pulls her out and brings her to me. Then they tell me how dangerous that could be, a child died recently you know b/c a piece of furniture fell on him (wasn't it a dresser?). Just so you know, the Barbie house weighs a whopping 3 pounds max and if by chance it did fall, it wouldn't even leave a bruise (she got platelets yesterday)!!! So I wasn't being a neglectful mother. So next Chelsea starts playing with the kitchen set and Granny immediately comes over and says, "don't let her play with the food in here, b/c I just wiped it all down and she always puts it in her mouth." Well duh she puts it in her mouth, she's 1!!!! And part of having a one year old is you have to wipe toys down all the time. From my point of view, yes toys have germs, but we just keep them clean, she needs to mouth toys, it's great for her learning as long as they're not a choking hazard. So I reply, "come on Chelsea, evidently there's nothing in here that you can play with," and we returned to our room. We didn't go to the playroom for the rest of the day and we intend to stay away during the day from now on when that volunteer is there. That's the last straw for me.

Chels didn't go to sleep until 11pm so we were both very tired and I thought I'd try to take a nap with her this afternoon. She went down easily and I turned on our music and laid down. Well we've got some crazy heating / cooling issues in our room (it's either blasting cold air or hot air constantly), so it took me a while to fall asleep. Sure enough as soon as I fell asleep here comes Granny over the intercom, "movie and game check out in the playroom." And she talks soooo darned loud! The intercom runs through all of the rooms, so Chelsea sits straight up, as do I, then thankfully lays back down, but I'm up and I've got a migraine at this point. You can imagine I'm fuming, but decide to take a couple of pills for my headache and attempt sleep again. What do you know but as soon as I fall back asleep, I learn that Cindy has a phone call on line 6. Why the heck do I care???? This time Chelsea was really freaked out and started crying, so I decided to take up this intercom crap with the front desk. Of course they said there was nothing they could do, and they can't turn off the intercom in just one room. I asked them if they could please try to be respectful of the afternoon hours when many children are trying to nap and they reminded me of their quiet time of 3-4pm. I asked her if she thought that was realistic for kids to take naps that late in the day, and she agreed it wasn't. They suggested taping a towel to the wall over the intercom, so my nurse came in and did that. It had fallen off the wall by the time Chelsea awoke. Maybe we need to super glue it tomorrow.

This afternoon wasn't quite as bad, Chelsea only drank 4 ounces all day so after nap the nurse hooked her up to fluids and we were back to chasing her around with the pole. I did however teach her how to sit on the base of the pole while I pushed and she got a kick out of that and we cruised the halls for a while. I decided to blow off some steam by taking a walk around the hospital. I was on guard I'll admit because quite frankly the hospital is in the middle of the "hood". In fact when getting directions here from our ped. he warned about missing our exit. If you miss it by just one exit you'll end up in the worst parts of KC! Hmmm, great place for a children's hospital right? Well, I wasn't mugged, and I did feel refreshed after my walk, so I will complain no more.

Tonight Ryan called me on his way home to tell me that Logan met with the counselor at school today. I didn't get a lot of details about his conversation, but he did tell me that the counselor asked him at the end, "if there was one wish you could have, what would it be?" Logan answered, "that my mommy would come home." I couldn't talk for a few minutes because I was just bawling. I can hardly type his response because it just tears my heart up to think about it. I miss him so much and I hate that he's so affected by this. He's really looking forward to visiting though and he told me tonight, he misses Chelsea and he loves her so much. He's quite mature for being only four years old. I can't wait to hold him on Friday!

Chelsea fought sleep tonight, but she was so exhausted she was fussing and wouldn't play. I caught the maintenance guys on our floor a minute ago and asked them to look at our thermostat. I've been trying to get a work order in for four days now with no luck, so hopefully they're peeking at it now.

We'll draw labs in the morning. Chels had platelets yesterday morning, so I don't anticipate any transfusions. I'm guessing her ANC will be bottomed out though. Will update when I have details!
Carey